Talking About A Discourse That Doesn't Even Exist On Tumblr

i dont think the r slur needs to be reclaimed actually i think we can just leave that one where it is. it makes it very easy to identify what kind of person someone is when they use it

”autistic people don’t do [ extremely common higher support need , higher level autistic trait / symptom ] , that just stereotype”

you need include us too : you need include childish autistic person , you need include nonverbal autistic person , you need include autistic person who drool , you need include autistic people with intellectual disability , you need include autistic person with loud messy public meltdowns .

can not hide behind “it just stereotype” because that not true . there are many people very disabled by autism , you need remember us and include us .

Pinned

Storm was right in what she said to Rogue about the cure and I will fight people on this.

My name is Raven, he/him, I'm 20, and this is my disability blog. I am a multiple disabled person who has a bad job, has not yet learned how to drive, certainly can't live on my own, and I write and reblog posts. Please do not mock the spelling, language, grammar, punctuation, or whatever else of me or anyone I reblog here. This blog will focus mostly on autism and autistic voices, but I'll post about a whole spectrum. Mainly the ones listed below

I have autism, light-moderate support needs, medium moderate support needs when accounting for everything else. Hyperempathy, hypersensitivity to my senses, emotion regulation issues, find it near impossible to understand people when they aren't being up-front about what they mean, need reminders for actions of daily living (including eating) but can do them on my own when reminded. Should not be managing my own money. I am fully verbal, but with a lot of speech disability. I get overwhelmed extremely easily and when that happens, I completely freak out. I also have some kinds of cognitive and developmental disabilities but am not intellectually disabled.

I have a lisp, a permanent slur, trouble pronouncing crunchy consonants or words that start with a vowel (can do it, just takes my mouth a second to work,) and I talk very slowly. There's probably more and I just don't know it. Apparently my speech is so bad that the speech therapist in kindergarten said that there was so much wrong with my speech that it couldn't possibly be fixed. Also often tend to speak without thinking, which I can't really help.

I have severe ADHD, mostly inattentive, dyslexia, dysgraphia, articulatory initiation anomia, dyspraxia, TBI from when I was a baby, migraines (all kinds, including ACM,) sensory processing disorder, chronic daily headache, myofascial pain syndrome, chronic fatigue, anxiety, depression, PTSD, OCD, and some other stuff.

Recovering from kleptomania and compulsive lying.

Warning

- I lost a friend to ABA. He's dead because of ABA. There is no ABA positivity here. I will be hating on it.

- I talk about ableism a lot. All posts will be tagged as ableism

- I am transgender

I DO answer both educational and writing questions.

seeing supposedly 'neurodivergent friendly' creators (who are usually Autistic/ADHD) stigmatize NPD, ASPD, and any PD under the sun makes me so angry. like they think 'neurodivergent' means 'Autism and ADHD' when the creator of the term meant for it to be a term for anyone with a different neurotype INCLUDING PDs, schizophrenia, psychosis, and all the disorders people love to treat horribly. i've had people tell me that the term was originally intended for AuDHD only so people are just using that definition but... definitions change. i thought autistic people knew that. i thought we were familiar with this. but not when it comes to demonized disorders... ok.

(p.s. it's really easy to just say Autistic, ADHD instead of 'neurodivergent' when you're only catering to Autistic and ADHD individuals)

Compulsive Liars: a Really Bad Tutorial Okay, so I’ve decided to write a little tutorial on compulsive lying, because what I’ve seen for Janus can sometimes be a little… lacking. Not giving flack to any writers, just giving out some information. I’m definitely not an expert, just telling some of my own experiences. (Here is a really good link to a website about compulsive lying, if you want a credible resource!) I’m not going to talk about pathological liars on here because I know next to nothing about them, so if that’s what you’re looking for…sorry.

Keep reading

Where are all the "slow" kids, the challenged kids, the burnouts from birth, the burden to have in class? Where are the autists who can't mask, who self harm, who are loud and can't stop stimming? The NDs with processing disorders, brain damage, brain fog? The ones with down syndrome, FAS, and other conditions that people treat like curses or defects. I hardly ever see them past 18 and I know they don't just dissolve once they become adults.

Stop Making Psychosis A Villainous Trait Challenge

girls sitting next to me talking about how a peanut allergic kid transferred into one of their schools and all peanut products were banned. They're genuinely hating on this kid so much. One of them compared it to lactose intolerance and how they don't restrict who eats what and I... THERE'S A BIG DIFFERENCE BETWEEN "I DRANK MILK AND SHIT MYSELF" AND "I SMELL A PEANUT AND DIE OF ANAPHYLACTIC SHOCK" they are in fact WILDLY DIFFERENT DISORDERS. One is the inability to digest a sugar and the other is a deathly allergy. This counts as ableism right? Like hating on someone because you have to accommodate their involuntary life issues?

this is going to be a long post, it's kinda just me writing all my raw unfiltered thoughts on ABA therapy as someone who actually went through it

-> TW for ABA therapy, child abuse, suicide <-

I was functionally diagnosed with autism at the age of 3 but it wasn't until I was 13 that I was actually formally evaluated for it and given an official diagnosis. I was behind in social skills and developmental skills

[ID: "was also described as a sensory seeker. She does not currently have any friends and has struggled to make and maintain peer relationships throughout her childhood. Difficulties with social skills were initially noted when she was in preschool (years before the onset of clinically significant symptoms of anxiety and"]

[ID: "Social functions: [blank]'s mother also completed a questionnaire rating her social responsiveness. Her responses on the SRS-2 indicated that [blank] is demonstrating severe deficits in the areas of Social Communication (reciprocal social interaction and nonverbal and verbal communication), Social Motivation (motivation to engage in social-interpersonal behavior) and Social Awareness (perceiving social cues) and moderate deficits in the areas of Social Cognition (understanding social cues). Severe Repetitive and Restrictive Behaviors (stereotypical behaviors or highly restricted interests) were also reported. The total T-score on the SRS-2 indicates severe deficiencies in reciprocal behavior that are likely to result in interference in everyday social interaction"]

[ID: "%ile) are mildly impaired, while her social skills are moderately impaired (2nd %ile). By domain, demonstrates mildly to moderately impaired abilities in six adaptive skills areas, including self care (9th %ile), communication (5th %ile), home living (5th %ile), self-direction (2nd %ile), social (2nd %ile), and leisure (1st %ile)"]

and ultimately all this ended up with the number one recommendation after my autism evaluation being for ABA therapy.

[ID: "Recommendations: Based on the above results, the following recommendations are made for [blank] and her family.

1. ABA therapy: [blank] May benefit from an intensive treatment program to foster cognitive and communication skills, improve independence and adaptive functioning, and help manage interfering behaviors (i.e home-based, 1:1 instruction, task analysis, etc.) Most private and community programs are based on principals of operant conditioning and taught in home with 1:1 instruction"]

*I'm getting misgendered here. my pronouns are he/him

"operant conditioning"-- like a dog 🐕🐕. woof woof.

my mom didn't know any better so she put me in ABA therapy with the Center for Autism and Related Disorders. she regrets this. I regret this more.

my autism evaluation was cruel, it dissected all my flaws as if I was a bug under a microscope in a highschool laboratory. my evaluation was passed around to ABA therapists, a line of high schoolers peering through the microscope examining the most vulnerable parts of me.

and I choose the highschool analogy quite deliberately. most of the ABA therapists at my center were recent highschool graduates with no degree and little training. they knew nothing about autism and had no qualifications. you need more certificates to become a professional dog trainer than to become a professional human trainer.

"operant conditioning"

and I wish I could say it was just a poor choice of words but ABA therapy was dog training for children. my dad used to call me an "it" and somehow I felt less dehumanized by that than the entire experience I had in ABA therapy.

I was the oldest person at my center (I did not receive in home therapy) with the next oldest being approximately 3 years younger than me. at the time I felt babied. I was surrounded by 5 year olds and I was treated as if I was not just a 5 year old but an autistic 5 year old and anyone who has been a visibly autistic 5 year old knows what that feels like. I had escaped being an autistic child and now I was being treated like one again. The head of the program tried to console me by telling me adults received their services too.

[ID: "Following the principles of applied behavior analysis, CARD has developed a treatment approach for children and adolescents with"]

this was the first lie they told me. CARD does not work with adults.

I was not allowed the privileges of being a 13 year old. because I was an autistic 13 year old and therefore I was the equivalent of a 5 year old. I was in psychotherapy at the same time and I had grown very accustomed to some level of freedom in therapy. I was allowed to use the bathroom independently. in ABA therapy I was not allowed to use the bathroom independently. I tried once, me and my therapist were on an "outing" to the grocery store and I told my therapist I was going to the bathroom and walked off and I got a very stern talking to about how I needed to "stop eloping" and if I didn't stop it would "become a behavior"

eloping became a common theme used to control me and squeeze money out of my parents.

out of everything I hated in my life, including severe physical abuse at home (which they did not report), I hated ABA therapy the most. I would repeatedly make serious threats of suicide to try to get out of ABA. no one cared. everyone thought I was being dramatic but there were times I wrote out suicide notes and ABA was among the reasons I listed. ABA made me feel hopeless, depressed, revolting, disgusting, inferior, and less than human. between ABA, my home life, and my social life I had never felt so hated and it was boiling through my skin. I acted out, I was bullying people, I was behaving recklessly, I was starting fights, and all this only made the oppressive force of ABA crack down on me harder. I was a cat hissing in the corner begging to be left alone and ABA brought a net to try to tame me further. every time I scratched back it was listed as a reason I needed to be there.

I was "disruptive" and "rebellious" and "uncooperative" and "resistant to treatment" and no one could figure out why I was "regressing" despite me shouting the answer. I was screaming and no one was willing to hear me

I hated myself and my autism. my autism diagnosis made me want to die. I didn't feel freed by it or understood I felt ashamed and disgusted. I felt incompetent and like I had failed. I was ashamed to be at ABA, it was my biggest secret. I'd lie to my friends about why I couldn't hang out and I'd lie to people in public about who the woman I was with was and I'd lie about all of it to try to cover up my most shameful secret.

ABA therapy did nothing but foster this. In ABA therapy I was mocked for being autistic and what was happening only clicked when a young kid, maybe only 4 or 5, was flapping his hands and a therapist took out her phone and recorded him. we were circus animals. it was all an entertaining show to them while they poked and prodded at us with metaphorical hot irons to make us dance. the first time a therapist laughed at me for rocking back and forth I wanted to throw up. I almost did. it was systematic bullying of children I was forced to watch and experience.

my point is: the last place on earth I wanted to be was the ABA center.

so of course I tried to leave. my mom would bring me McDonald's and I'd beg, sobbing real tears, to leave early because only she could sign me out. every time I'd go to meet her I'd be marked as "eloping" and my hotel stay in hell would get extended.

my natural response to a stressful environment (leaving) was pathologized. I was eloping this way and that way and never once did I actually, truly elope. that word was a weapon used against me. they used my "elopement" to justify extending my stay to my parents. they ate it right up.

they argued I needed to stay there because I was making friends. this was true, I'm great at getting along with children it's part of why I want to go into pediatrics, but I had also made real friends with people my age at my highschool. ABA was getting in the way. I wanted to spend time with my friends outside of school but ABA took up all my time from the minute I left school to 6pm and all day on weekends. I was doing a full time job's worth of hours. I complained about how I was missing out on spending time with my real friends (as in, over the age of 7) and I was met with almost no wiggle room in my schedule. I was allowed to pre-plan time to spend with friends but every time my friend group wanted to do something spontaneously? I had to say no, and I had to lie about why. my friends would share stories about driving around town with 2 people in the group stuffed in the trunk, of hanging out in the woods together, of taking part in ordinary highschool activities as ordinary high schoolers and it made me cry because I was not an ordinary highschooler and I was not allowed to participate in ordinary highschool activities. I was one of those weird, unpleasant, socially awkward autistic people instead. eventually, they just stopped inviting me. I was forced into the out group by ABA.

I'll never get that back. I'll never get a chance to be a normal highschooler ever again.

when I did have time available to hang out with people I never had the energy to. at the time I was living with an undiagnosed physical disability and I was begging to see a doctor but no one would believe that it wasn't just anxiety. the people who believed me least of all were the people at the center.

I was constantly told I was trying to get out of therapy by "feigning" very real pain and fatigue. I tried to explain spoon theory, and that I had limited spoons, and in response they made a task for me to name things to "regenerate spoons" that's not how it works. I wasn't the only physically disabled person there. there was a wheelchair user who was constantly forced to stand for periods of time despite being in agony doing it. he wasn't allowed rewards until he did it.

rewards were used to train us like dog treats are used with dogs. sometimes the treats were fun! I'd get to cook, play Mario kart, and go on outings. other times the treats were "using the correct name and pronouns for me." I'd constantly be threatened with deadnaming and misgendering if I was being "noncompliant."

misgendering because of my autism was a theme in my life. my neuropsych evaluation report misgendered me. my parents misgendered me. the staff at ABA misgendered me. at one point the head of the program suggested that my "gender confusion" was because of my autism. my abusive father latched onto this and still claims that the reason I'm "confused" about my gender is because the evil transgenders tricked me into thinking I'm one of them because I'm autistic and therefore easily impressionable.

the two therapists I had were nice because I refused to work with the others. they weren't on a power trip and both eventually left because they realized the harm the organization was doing. other therapists were not so kind. other therapists were on a power trip, because in their mind lording over autistic 5 year olds (and autistic 14 year olds) makes them powerful and strong. occasionally I'd get stuck with one of the other therapists when my usual therapists were out. they would talk to me in a baby voice. they would make fun of me for rocking back and forth, for not making eye contact, for talking about Skyrim "too much" and generally just for being autistic.

I never really knew what I was supposed to be doing, just that I was doing it wrong. the therapists there rarely actually told me what my tasks were they'd just mark yes or no on them, judging me for something I wasn't aware of. I was never actually supposed to graduate, I was never supposed to get out, if they wanted me to succeed they would have taught and explained what was happening but I was intentionally left in the dark.

I continued threatening suicide to get out. no one took me seriously. I was seriously considering it. there's no happy conclusion where someone finally realized it was all wrong, or I figured out how to be allistic and graduated, or I felt more comfortable there. I only got out when covid struck and shut the center down. it's gone now, replaced by a family advice center. I hope their advice for autistic children is to never put them in ABA.

there is no grander message here just suffering. I'm sorry if you were expecting some sort of great point at the end of this. there's not one. it happened, I wish it didn't, and I hope no one else experiences what I did ever again.

okay to reblog

I feel like we don’t talk enough about how having chronic illness and/or chronic pain makes you irritable. It makes you grumpy. It can make you a not very fun person to be around. 

We don’t talk enough about the ugly sides of chronic illness/pain. The parts where you feel like a bad person not because of the pain in of itself but because everyone else thinks you are pushing them away. The times when you don’t bear it like a saint and the roughest edges of your personality come out. Where maybe you do hurt other people’s feelings. Its a complicated side of the experience thats resists an easy answer.