Spiritually My Hair Reaches My Waist, Physically I Look Like The Ugliest Lesbian Ever.

reminder that if anyone wants to talk I will be here.

being chronically ill with fluctuating symptoms is so annoying because when it's at it's worst im like "okay i desperately need some type of mobility aid right now, i haven't been able to leave my house in days" but then i'm able to go for a walk one day and suddenly i feel like im exaggerating my symptoms and that i actually can walk fine and it would just be embarrassing and pointless to ask for a mobility aid assessment

but like ... not struggling as much one day doesn't take away from the days that i struggle the most

our pain is valid even when it's not at it's worst and we deserve the accommodations we need even if we don't always need them at all times

Holly Black- The Stolen Heir

anyone have tips for moving out of state? I might be going out of state for school and I'm scared out of my rocker.

biggest thing that pisses me off is people trying to talk someone out of a mobility aid, first off; what makes you think you know their needs more than them? what makes you think you know the amount of pain, imbalance, fatigue, etc symptoms they're going through?? Are you living in their body? NO!

what’s it called when you’re so disconnected from reality that cold water doesn’t feel like anything and you can barely taste food anymore

—Ursula K. Le Guin, from a 1988 interview, collected in Ursula K. Le Guin: The Last Interview: and Other Conversations (Melville House, 2019)