For My American Mutuals🫶🏼

time of year i remind every cane user to get an ice pick so you dont fall and die

sometimes i think ive made peace with being permanently disabled & feel like even tho it sucks i can handle it. and sometimes i have to scream and scream and scream and cry myself to sleep because this is forever & i dont know how i’ll manage that

I love Switzerland’s entry so much

being productive is not about fancy bullet journals or well-thought out plans or meditating every morning!! while they mean well, posts/videos about ‘maximising’ productivity often make us feel inadequate, or like if we’re not doing our best then we’re not doing enough. don’t complicate things. it’s OKAY to just have one or two tasks on your to-do list, to study in your pyjamas, to only feel up to doing a couple hours of work a day. you don’t have to make green smoothies or have neat handwriting or workout every morning. scribble those notes if you need to. it’s okay to just grab some toast when you don’t feel up to much. it’s okay to not do everything you told yourself you would do, like that run you planned or reading that book. life doesn’t have to be this hard. if you get overwhelmed by this, set yourself a small list of achievable goals for the day. it may seem simple. good. that’s what you need. don’t beat yourself up for not being perfect. you are okay.

you are okay.

@ august please be a little gentle with me I’m so tired

This makes me really happy. I hope I can be that for someone.

oh by the way!! yesterday morning i saw someone my age walking with a cane while i was going to school. it was the first time and it was really quite exciting!

i haven't really needed my cane in a while now but seeing other young people using one really makes me feel less alone <3

this is your reminder that if you are young and going out in public with a mobility aid there probably will be some seemingly able-bodied kid watching you and feeling less alone. and just maybe they might try taking their aid outside, someday.

I forgot about this post. But I did it @wittlepuppydog. I didn't shave my head completely, I just got a short hairstyle instead. It was about 5 months ago now and I absolutely love it. It has made the pain considerably more bearable as hair is no longer brushing against my face constantly, and I no longer have to tie it up to get it out of the way (which also hurts).

Honestly, it's not even just about the pain. I feel more like me. I recognise myself in the mirror. I like my hair, I like my face - something I could never comfortably say before. It feels like my pain gave me a gift. I never thought I would say something like that about my chronic pain. But yeah, it has helped and I have never felt more like myself than I do now.

And people's reactions and their staring honestly haven't faced me. I don't care about it anymore. Also, it's hard to say whether they're staring bc of the hair or bc I'm young and disabled and walking with a cane.

Thought I'd add some pictures for reference;)

I've been considering shaving my head because of the pain. It's still constant and my hair makes it worse. Is it stupid? Will I regret it? Will I feel like I'm "giving in" to the pain? Does that even make sense? I'm tired of feeling like I have no control over the pain. And this feels like a way I can maybe at least not hurt myself more and gain a little control back? I don't know. I'm tired

Please don’t feel guilty for taking a break or giving yourself some time off. Sometimes you need to rest one day in order to reach heights you previously believed to be unattainable the next. Work hard, rest hard. 

I've been dealing with some of the worst pain of my life for the past 6 ish months. Knowing it could have been avoided if my pain doc had not decided to stop one of my medications is bittersweet. If she had only listened when I told her the pain was worse. But she didn't care. She simply told me to try not to think about it. I should have fought harder but I was so exhausted and dissociated. I've finally started treatment for it again, I just hope it works fast. I'm so tired...

you do not deserve your pain

you did nothing to deserve your pain