Confessions Of A Burnt Out Disabled Human:

Confessions of a burnt out disabled human:

I’ve been disabled since one random day when I was two years old. That’s when the fates decided, El would have paralysis and brain issues.

I didn’t know I was different until I was 5 years old and figured out that I looked different compared to everyone else. I had two friends throughout elementary school who didn’t give a shit that I was different. But everyone else cared. From fellow classmates that bullied me, to teachers that compared me to my older brother… and not in a good way.

I got my IEP revoked because my kindergarten grades were good, only to get it reinstated in second grade because the admins started to realize their vital mistake when my math grade started slipping.

In middle school, my math teacher convinced my tutor I was faking my math processing issues. The tutor stopped meeting with me, even after my parents’ protest. I got a C in math at the end of that year, when I was getting high Bs and low As while I was meeting with my tutor. My middle school admins gave me the wrong English standardized test and they decided to rectify it on the math standardized test day. They made up for it with a measly Starbucks Frappuccino.

I was purposefully put in a dance class meant for 8-11 year olds when I was a sophomore. I was the oldest one there. I came home crying every night, but I was too loyal to quit. A year later I auditioned for my city’s little production of the Cinderella ballet. At the time, I had 10 years of experience. They gave me, a 16 year old, a role with 35-50 year olds. I signed up to audition for my church’s youth band when I was a junior in high school. The band managers swore up and down to me that they’d reach out to me to set up an audition. They never did (hindsight, I’m glad they never did. But my point still stands). No one takes me seriously.

I graduated from high school with a 4.29 gpa (dual credit). My high school didn’t acknowledge this as legitimate and wouldn’t consider me an honor grad because my unweighted GPA was 3.29. I needed a 3.3 unweighted. My high school purposefully kept my ACT scores in a vault for two weeks before sending them off, getting me and my family in hot water with ACT because they thought we were cheating. I got a 14 on the math… so… hah, no cheating. I got into college on a technicality because of COVID restrictions. I feel like a fraud. I constantly have to tell myself I deserve to be there. I constantly panic when professors ask me, “Kayla, what do you want to do with your life? When are you graduating?” Finding work as a disabled person is incredibly difficult. Do they really think I know? I’m just hoping I’ll figure out how to get by.

I started trying to date in the summer of 2021. And do you know what I have to show for it? Abandonment trauma and a fuckton of content for depressing disabled gay poetry. I’m losing hope. I shouldn’t have to disclose my disability. I shouldn’t have to worry what people might think. I want that picture perfect happy ending. I deserve it as much as my able bodied counterparts. I don’t want to be a bitter spinster. But, yet, so many people see being disabled as an immediate no. So hell only knows if love is in the cards for me.

It’s hard having disability pride. Its hard to be proud of what makes you stand out in ways you didn’t choose. I’m tired. I’m burnt out. I’m exhausted.

More Posts from Emptyspaxes and Others

6 years ago
I Want To Talk About The ~feeling~ Of Making Art, Forever. Drawing These Kinda Lines Is Very Soothing
I Want To Talk About The ~feeling~ Of Making Art, Forever. Drawing These Kinda Lines Is Very Soothing

i want to talk about the ~feeling~ of making art, forever. drawing these kinda lines is very soothing to me. what it looks like is not as important as the process. that’s why kids are the best artists because they don’t overthink it and just make. they don’t usually ask for an eraser when they want to draw and they’re not building up a whole image in their head before they even start. they’re in the moment, as honest as possible

7 months ago

can i call you back im doing something weird

1 year ago

Like, I really need people who are against self diagnosis, the majority of whom had the privilege of being diagnosed in childhood or adolescence, to understand how racist, classist, and ableist this viewpoint is.

So many people of color go undiagnosed. Their adhd/autism is chalked up to behavioral problems and no one bothers to look into it further.

So many poor people don’t have the money to be able to afford getting a formal evaluation. That shit is expensive.

So many people get misdiagnosed. Afab adults in particular are more likely to get diagnosed with BPD when they actually have adhd or autism. People with a trauma history have their symptoms chalked up to trauma and all adhd/autism specific symptoms are ignored.

If you were diagnosed as a child or teen you have absolutely no right to dismiss people (especially adults, afab people, and people of color) and act like self diagnosis is harmful. Most people who self-dx do so after extensive research and they know themselves better than you. Self-dx doesn’t take anything away from people with a formal diagnosis; it helps the individual find an understanding community and coping skills that make their lives easier. If you’re bothered by that, that says a lot about your character.

2 years ago

The last act of betrayal was my betrayal to myself.

Like everyone else, I turned my back on the girl in the mirror. Now years later, I cannot recall who I was when I died. I don't remember the day or month or year but I know I swallowed the pain.

I , therefore, was complicit in my murder.

-a.

6 years ago

😂😂 explains my whole life...

My typical visit to an Art Store.

image

I’m out of canvas boards. I think to myself. 

Then follows a long, elaborate planning process. If I leave work by 6, I can rush to the art store on the way back, and still be home on time. The entire day is spent in a jittery excitement of getting my hands on those damn canvases.

It’s 6:05. I’m at the art store. Soaking in the beauty of my surroundings. I look at the canvases, and if someone observed closely, they would see me drooling. I resist picking up the largest one available, and modestly pick up what I had come for. Eight by tens. Yup, those are the ones I need. How many, you ask? As many as they’ve got in the store.

And then as I casually walk towards the billing counter, I can’t help but notice (because I’m seeking it out) the paint aisle. Didn’t I use up all my white paint!? I don’t recollect, but decide that I have, and pick up a tube. What about texture white? Yup, picked a jar. Oooh would you look at that beautiful turquoise? In the shopping basket.

As I decide that it’s time to leave, I remember that there are only a few blank pages in my travel sketchbook. Walking towards the sketchbook aisle is like opening a can of worms. I know what’s gonna happen, and yet I can’t resist it. Gotta pick up a tiny sketchbook that can fit into all of my purses. So, what do I do? I pick up an A3 watercolour block. Perfect. Oh would you look at that charcoal!? I think to myself, having never used charcoal successfully. I will now. Of course I will.

Three brushes, a painting palette and a set of pastels later, there I am, standing at the billing counter. My eyes glace at a beautiful display of writing pencils. These would be a perfect addition to the seven hundred pencils I already have. Forty five minutes later, I walk out with my bags heavier, my wallet lighter, and I’m smiling. Perfect.

1 year ago

I hate the idea that I have to be good and well-behaved bc I'm disabled. I'm an evil little guy who exists to cause mischief in a redneck town

3 months ago

Some things I do to help manage my depression after a manic episode:

Find a good audiobook to listen to so i don't have to waste energy actually reading

Limit my time on social media

Let myself indulge in video games when I'm off work

Always have frozen foods for any meal in the freezer. I have pancakes and these honey meat and cheese crescent rolls I made for breakfast. I have random staples for other meals like diced cooked chicken, different types of veggies, mini potstickers, egg rolls, a pizza, etc

Stay stocked up with all sorts of soups. Sometimes a hot bowl of nutritious soup will set me right for an hour or so

Stretch in the morning and try to have a sip of water after

Use a water flosser and mouth wash when I don't want to brush my teeth

I like to make pasta sauce in bulk and freeze it so I always have fresh pasta sauce on hand

I make indulgent dessert teas with way too much sugar and chocolate

Make myself do a single chore a day no matter how awful it is. I sometimes cry the entire time even. Just 1 though dealers choice. I usually make the bed or do a load of laundry if I'm out of underwear

Blast music

If I feel the need to hurt myself, I do an intense workout instead

Sit in a small, dark room with a soft blanket and let myself be angry and sad and cry and kick and yell. I find being able to get the emotions out like this helps me a lot

Go to bed early and sleep in a bit

Play games on my phone instead of doomscrolling

Make myself have a glass of water in between other drinks so I can at least be semi hydrated. I get dehydrated very easy and it makes my mental worse

Give myself sweet treats as rewards. Things I normally wouldn't ever get

Go sit by the water and watch the snails or crabs walk around

Everyone is different so these things may or may not help you and that's ok. I'm just sharing things that help me. Some definitely take a lot of energy to do and I've found that pushing myself a little more every day helps me recover faster as long as it's paired with plenty of sleep and rest otherwise.

6 years ago
Night Of The Living Dead (1990) Dir. Tom Savini
Night Of The Living Dead (1990) Dir. Tom Savini
Night Of The Living Dead (1990) Dir. Tom Savini
Night Of The Living Dead (1990) Dir. Tom Savini
Night Of The Living Dead (1990) Dir. Tom Savini
Night Of The Living Dead (1990) Dir. Tom Savini
Night Of The Living Dead (1990) Dir. Tom Savini
Night Of The Living Dead (1990) Dir. Tom Savini

Night of the Living Dead (1990) dir. Tom Savini

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emptyspaxes - Bisho
Bisho

I go by Bisho. I'm chronically ill, Autistic, and Physically Disabled. I love Horror Games and Kirby so much. I suck at social interactions online and in person.

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