Yess!! I'm Coeliac And I'm On A Cooking Rota With My Friends- They're All Really Good At Checking Ingredients

Yess!! I'm coeliac and I'm on a cooking rota with my friends- they're all really good at checking ingredients and they scrub all their utensils so contamination is rare, and my contamination avoidance is the same as theirs anyway, and yet when I asked for advice online about talking to them about not using my wooden utensils on gluten stuff etc, I was bombarded by people telling me to cook for myself- I wasn't asking for them to dictate how I choose to manage my condition, I wanted a way to tell my friends why I don't want them using my stuff without offending them

I don't get hugely sick from contamination, and in my case specifically, I don't think avoiding gluten to extremes is worth the stress, not to mention cooking for myself every night etc

It's my life- I can do what I want with it. And I choose not to stress about contamination. Other people can, and I understand that, but I also believe that it's up to each individual how they manage their condition- if they don't care, that's up to them.

Just don't tell a restaurant you're coeliac and then eat gluten from your friend's plate- if I'm gonna eat something from my sister's plate, I tell the restaurant it's a mild intolerance and not to worry about contamination

When I tell them I'm coeliac, I will never take these risks- it's not fair on those who cannot deal with contamination, nor the chefs who work hard to keep my food safe when I'm just gonna render it pointless anyway- but I don't think it's wrong to take these risks if you're coeliac, some people act like it's the worst thing you can do ever

I'll deal with this shit how I want, thanks. I've found my balance. Sorry it's not the same as yours.

This may be a hot take but anyways.

Whilst we need the general public & to some extent, newly diagnosed people with coeliac disease to understand the seriousness of the condition. I wish people within our community would stop fear mongering so much.

We get it. We need to not be exposed to gluten. But also we still need quality of life. There comes a point where the harm stress does to our body, outweighs small occasional risks of exposure.

Having a ‘may contain’ food item once in while, is not that serious. It is not going to do a massive amount of damage to our bodies in the long term, even if it does have traces. Getting exposed from eating out one time, is not going to cause cancer.

Some people get extremely ill & I’m not dismissing that. Most of us want to avoid it regardless of the severity because it sucks. But what I am saying that if people want to take small risks once in a while, they shouldn’t be made to feel bad or like that is going to kill them. People should be allowed to ask ‘hey, anyone tried this may contain? Did you get sick from it?’.

I don’t know why but it’s always the ‘may contains’ that people are the most wildly judgemental about. Everywhere you eat out is a ‘may contain’. Your home is one huge ‘may contain’ if you live with people who eat gluten.

Do your best. Allow your body to heal after diagnosis &/or exposure. Figure out what risks feel like a reasonable balance for you between not getting sick/not having ongoing exposures & quality of life. Maybe this works better in places where it’s easier to avoid exposures because of better/clearer labelling laws but that’s all I can speak to & where the chaotic judgement is coming from too.

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2 months ago

yknow ever since people realized tumblr isnt dead and have decided to flock here from twitter and tiktok ive seen a huge influx of people in fandom spaces who dont reblog anything. at all.

like, i used to have an art blog with 340 followers. not a ton but not a small amount either given how this website works with creators. and in my experience back then even the ones who only left likes still reblogged other things or at least posted their own stuff. literally the only empty blogs were clearly bots.

but on this New art blog, i've had so many people with fandom-specific headers and icons with actual usernames as urls and some kind of title or description, but have. Nothing. no posts. all they do is like things. and it's always public, too. their following list and their likes list.

and honestly all it makes me think is that these people are New and also don't know how tumblr works. how likes don't give exposure. not even in a "oh, i know it doesn't give exposure, but i'm still going to reblog anyways" way, but in a genuine honest to god straight up doesn't realize tumblr likes don't work like twitter's.

PLEASE please if you're from tiktok or twitter or whatever please reblog people's art both fandom and original if you like it!! and maybe actually pad out your blog's content in some way so people won't potentially see you as a bot and block you.

REBLOG ARTIST'S WORK. THIS IS THE ONLY WAY THEY GET ANY ATTENTION ON THIS WEBSITE OH MY GOD. PLEASE. I BEG of you

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batsinnappies - Ed - Comms Open!
Ed - Comms Open!

Just doing my best :) please search '#mystuff' for my art and original posts :320Coeliac disease sufferer of 18 yearsDwi'n dysgu Cymraeg

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